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79VoQngzxXqWZMjQuqneTr6WRq28GiQEq4Bq2fKHUq36kRR3SzQumyYq3Wdf4XJgdmIosiYMgIz2rpD679WAww

All of Us Research Program: Researcher Publication Reporting

The All of Us Research Program Publication and Presentation Policy requires that you report any upcoming publications or presentations (including peer-reviewed manuscripts or conference abstracts) resulting from the use of All of Us data at least two weeks prior to the official date of publication or public presentation.

The information you provide will be used by the All of Us Research Program for notification and communications planning purposes, not for program review or approval unless the authors request a policy compliance review. This information or any manuscript you submit will not be shared or disseminated outside the program until after it is published.

Please remember that you are required to abide by the All of Us Publication and Presentation Policy and the Data and Statistics Dissemination Policy for all publications and presentations using All of Us data. You must also continue to abide by all other All of Us policies, which you may find here. If you have questions about any All of Us policies, please contact User Support.

Communicating Author

Last name

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First name

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Middle initial

All of Us Research Program Username (i.e., researcher.name@researchallofus.org)

* must provide value

Institution

Institutional Email

* must provide value

Phone

Title of Publication or Presentation

* must provide value

Please include your project's abstract or a brief description. The All of Us Research Program's communication team will use your project description to help summarize and communicate information about completed research projects to program stakeholders and the public.

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Type of publication

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Journal Manuscript

Journal Preprint

Meeting Abstract/Presentation

Scientific Poster

Other

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According to the the All of Us Data User Code of Conduct, you must also submit an electronic version of your final, peer-reviewed manuscript to PubMed Central immediately upon acceptance for publication, to be made publicly available immediately without any embargo period. More information on the options for depositing to PubMed here .

Journal

URL for journal/outlet

Anticipated date of publication

* must provide value

M-D-Y

Scientific meeting/conference

Website link for conference/meeting

Location of conference/meeting

Date of conference/meeting

M-D-Y

Please specify.

Please provide the titles of ALL Researcher Workbench workspaces associated with this work.

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Do these findings have a potentially significant scientific or health impact? Or do you expect that they may otherwise attract significant public attention or cause controversy?

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Yes

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Please explain.

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Data and Statistics Dissemination Policy

According to the All of Us Data User Code of Conduct and the program's Data and Statistics Dissemination (DSD) Policy, the following criteria must be met for all publicly disseminated data unless specific approval otherwise has been sought and granted by the All of Us Resource Access Board.

No participant count of 1 to 20 can be published or distributed directly (a count of 0 is permitted); and
No data or statistics can be reported that allow a participant count of 1 to 20 to be derived from other reported cells or information, including in text, tables, or figures. This includes the use of percentages or other mathematical formulas that in combination would allow an individual to deduce a participant count of less than 20.

You can find guidance on how to correctly obfuscate small counts in this user support article. You may also request that the All of Us Resource Access Board check relevant portions of your manuscript or presentation (e.g. tables and figures) for compliance with this policy. We encourage you to take advantage of this option to help prevent compliance issues.

We will now ask you to attest to your compliance with these policy documents. Please be advised, you are attesting on behalf of yourself and all co-authors of the publication or presentation. You are responsible for notifying your co-authors of your submission and attestation.

I have read the All of Us Data and Statistics Dissemination Policy and Data User Code of Conduct, and I understand my responsibilities as an Authorized Data User. Please provide your initials.

* must provide value

Add signature

Select One Option

* must provide value

I hereby attest that my publication or presentation meets the requirements stipulated in these documents.

I hereby attest that my publication or presentation has been granted an exception from the Data and Statistics Dissemination Policy by the All of Us Resource Access Board. (please attach relevant files at the bottom of this form)

I am unsure of whether my publication or presentation meets the requirements stipulated in these documents.

I would like to request an exception from the Data and Statistics Dissemination Policy by the All of Us Resource Access Board.

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Please provide your initials

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Add signature

Please send questions regarding compliance with the Data and Statistics Dissemination Policy to support@researchallofus.org. Please note that the Help Desk does not review manuscripts for compliance. After your compliance questions have been resolved, please return to and complete this form.

Please use the All of Us Data and Statistics Dissemination Policy Exception Request Form to request an exception to the Data and Statistics Dissemination Policy and wait for a response from the Resource Access Board. After the Resource Access Board has completed their review, please return to and complete this form.

According to the the All of Us Data User Code of Conduct and the program's Data and Statistics Dissemination policy, the following criteria must be met for all publicly disseiminated data unless specific approval otherwise has been sought and granted by the program's All of Us Resource Access Board.

No participant count of 1 to 20 can be published or distributed directly (a count of 0 is permitted); and
No data or statistics can be reported that allow a participant count of 1 to 20 to be derived from other reported cells or information, including in text, tables, or figures. This includes the use of percentages or other mathematical formulas that in combination would allow an individual to deduce a participant count of less than 20.

Please attest that all data presented in your publication meet the policy described.

I attest that all data presented in the described publication DO meet the requirements of the All of Us Data User Code of Conduct

The data presented in the described publication do NOT meet the requirements of the All of Us Data User Code of Conduct

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Did you seek and receive approval from the program's Resource Access Board to include data counts that do not comply with the All of Us Data User Code of Conduct?

If you have not received approval to include non-compliant data counts in your publication, you must work with the journal or conference to revise publication tables and figures to ensure compliance prior to publication. If you have questions or concerns about this process, please email support@researchallofus.org for assistance.

Yes

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Publications and Presentations Policy

According to the All of Us Publications and Presentation Policy, you must:

Inform the program of any upcoming publications or presentations resulting from the use of All of Us data at least two weeks before the date of publication or presentation;
Submit an electronic version of any final, peer-reviewed manuscripts to PubMed Central immediately upon acceptance for publication, to be made publicly available immediately without any embargo period once published (note: All of Us is not currently enforcing the no embargo period); and
Acknowledge the contribution of All of Us participants and the program to the work of your project.

If you are unsure of how to comply with these stipulations, please contact User Support at support@researchallofus.org. More information on the options for depositing to PubMed can be found here.

*Please note if you are in compliance with all Publication and Presentation Policy stipulations but your manuscript will not be immediately available in PubMed Central with no embargo period (i.e. the full text will be available in PubMed Central after 6 or 12 months), you may still attest to your compliance and submit this form.

I have read the All of Us Publications and Presentations Policy, and I understand my responsibilities as an Authorized Data User. Please provide your initials.

* must provide value

Add signature

Select One Option

* must provide value

I hereby attest that my publication or presentation meets the requirements stipulated in the policy.

I am unsure of whether my publication or presentation meets the requirements stipulated in the policy, and I would like to request assistance.

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Please send questions regarding compliance with the Publications and Presentations Policy to support@researchallofus.org. Please note that the Help Desk does not review manuscripts for compliance. After your compliance questions have been resolved, please return to and complete this form.

Please provide your initials

* must provide value

Add signature

Please feel free to elaborate upon any of your responses.

Other comments

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Please attach any relevant files you wish to share at this time. Such files may include article preprints, correspondence with the All of Us Resource Access Board, and others.

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